SSGAC Registration

Terms and Conditions of Use

By downloading data from the SSGAC Data Portal, you agree to the following Terms and Conditions of Use. If you are uncertain about these terms, please contact the SSGAC at contact@ssgac.org.

To demonstrate that you understand and agree to these terms, please fill out your name, email, and check the boxes next to each term below.

First name

Last name

I will not republish or share this data with anyone else, including co-authors. Each of my co-authors and collaborators (including research assistants) who requires access to the data also needs to use this website to individually accept these terms of use.

I agree to keep these data confidential and secure using standard protocols for sensitive data, e.g., password-protected computers and file systems.

I confirm that I will not attempt to re-identify research participants for any reason, including for re-identification theory research, nor will I attempt to contact research participants.

I understand that comparisons of genetically predicted phenotype levels across ancestral groups are usually scientifically confounded due to the effects of linkage disequilibrium, gene-environment correlation, gene-environment interactions, and other methodological problems. I have read and understand the principles articulated by the American Society of Human Genetics (ASHG) position statement: “ASHG Denounces Attempts to Link Genetics and Racial Supremacy.”(See also International Genetic Epidemiological Society Statement on Racism and Genetic Epidemiology.)

I have read the and understand the principles articulated by the ASHG with respect to "Advancing Diverse Participation in Research with Special Consideration for Vulnerable Populations”. In particular, I understand the principles articulated in the final two sections of this statement, “In the Conduct of Research with Vulnerable Populations, Researchers Must Address Concerns that Participation May Lead to Group Harm” and “The Benefits of Research Participation Are Profound, Yet the Potential Danger that Unethical Application of Genetics Might Stigmatize, Discriminate against, or Persecute Vulnerable Populations Persists.”

I agree to cite the paper corresponding to any summary statistics used in any publications or research, and I agree to provide a copy of any publications to the SSGAC.

I agree to report any misuse or data release, intentional or inadvertent, within 5 business days of becoming aware of the same by emailing contact@ssgac.org.

I certify that I am in compliance with all applicable local, state, and federal laws or regulations and institutional policies regarding human subjects and genetics research.

I agree that violating any of the Terms and Conditions may result in consequences including, but not limited to, any or all of the following:

Contacting my institution’s institutional review board (IRB) and/or scientific integrity office
Contacting my supervisor, department chair, dean, or similar institutional authority
Contacting any relevant funder (governmental or private)
Blocking the IP address I used to download data and/or blocking the public IP address associated with my institution(s)
Contacting the editor(s) of relevant journal(s)
Publicly describing my violations, in venues that include but are not limited to social media and letters to the editor

If one or more of these Terms prevents your planned use of our data, and you believe that your use case is socially beneficial, please contact the SSGAC (contact@ssgac.org) to explain the issue and appeal for an exception to the Terms. Please contact the SSGAC for instructions on how to appeal for an exception to the Terms

Last updated February 25, 2022